Fort Kent grandparents thankful superhero grandson enjoyed ‘best day of his life’
A 10-year-old Falmouth boy who has bravely battled a rare and severe form of epilepsy for the past 2 1/2 years engaged in a new fight on Sunday, Aug. 27, when he took on the superhero persona of Sonic Spider Boy and rescued a variety of well-regarded hostages of staged kidnappings throughout the Portland area.
The non-profit Make-A-Wish Foundation of Maine helped make Sawyer Fish’s dream come true and provided a customized superhero costume for him to wear on his adventures.
“He said it was the best day of his life,” said Sawyer’s maternal grandmother, Priscilla Chasse of Fort Kent.
On Sunday morning, nearly 20 police officers from departments in Falmouth, Scarborough, and Portland as well as local firefighters met with the youngster and helped him to rescue police officers at a variety of locations in the area. Sawyer’s superheroism culminated in his rescuing Slugger, the mascot of the Portland Sea Dogs baseball team, the minor league Double-A affiliate of the Boston Red Sox.
Portland Police Chief Michael Sauschuck ultimately presented Sawyer with a key to the city to thank the young man for his valiant efforts.
Sawyer is braving an uncommon form of epilepsy — electrical status epilepticus in sleep or ESES — which impacts cerebral function and randomly presented one morning when he was 8-years-old. Prior to that, he had been completely healthy, according to his grandmother. The impact and potential physical consequences of ESES are terrifying, Chasse said.
“It’s not like most people. It ruins part of his brain every time he has a seizure. Someday he may lose his ability to speak and lose his ability to learn,” she said. “Were praying and hoping. He’s getting the best of care.”
That care involves regular visits to New York with his mother, Christine Chasse-Nonni, to see a specialist, coordinated with visits every three weeks to Maine Medical Center in Portland where he receives 6-hour-long blood plasma infusions.
News of Sawyer’s heroic deeds has gone viral, spreading from Canada to California.
“It’s been a lot more than we ever expected; we can’t believe what they’ve done for him,” Dr. Marc Chasse, Sawyer’s maternal grandfather, said of Make-A-Wish Maine. Priscilla Chasse agrees.
“I have to give credit to Make-a-Wish. I’m making a donation to that organization because they made that child so happy. It’s a blessing to us,” she said.